For parents wanting to learn about congenital heart disease
Heart Defects in Children: What Every Parent Should Know
Author: Cheryl J. Wild, R.N., B.S.N.
This book covers everything from the details of specific congenital heart defects, infections of the heart and its valves, diagnostics, questions to ask your child’s doctor, what to do if surgery is required, commonly used medications, and future risk factors.
The Heart of a Child: What Families Need to Know About Heart Disorders in Children
Authors: Catherine A. Neill, Edward B. Clark, & Carleen Clark
This book is a good resource for parents of children with complex/severe congenital heart defects.
The Parent’s Guide to Children’s Congenital Heart Defects: What They Are, How to Treat Them, How to Cope with Them
Authors: Gerri Freid Kramer & Shari Maurer
Written by two mothers of children with congenital heart defects, this book is very helpful to parents on their journey through the world of living with congenital heart defects.
Practical Suggestions for Raising a Child with a Heart Problem
Author: Lisa Swanson, R.N.
This booklet is written by Lisa Swanson, a nurse and mother of a child with a congenital heart defect. This booklet addresses some of the everyday issues of caring for a child with a congenital heart defect.
You Will Dream New Dreams
Author: Stanley D. Klein
This is a series of inspirational stories from parents of children with a variety of disabilities and is designed to help parents both cope and develop a positive attitude in dealing with their child’s disabilities, whatever the severity.
The Heart of a Mother
Author: Anna Marie Jaworski
This compilation of essays from mothers and grandmothers of children born with congenital heart defects is meant to provide support and inspiration to families facing similar issues of heart disease in a child.
To Mend a Broken Heart
Author: Kids with a Heart National Association for Children’s Heart Disorders
www.kidswithheart.org
This book is designed to prepare parents facing their child’s first heart surgery and explains everything from the types of heart surgery, types of incisions, what to expect in the hospital and more.
My Heart Story
Author: Kids with a Heart National Association for Children’s Heart Disorders
www.kidswithheart.org
Written by a parent after her child’s surgery experience, this book is designed as a journal/memory book for the parent to keep while the child is in the hospital for surgery. Some pages are blank for pictures; others have lines for recording thoughts and experiences. The journal can help explain to the child, when they are ready, what they have experienced.
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